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Establishing a Core Outcome Measure for Fatigue in Patients on Hemodialysis: A Standardized Outcomes in Nephrology-Hemodialysis (SONG-HD) Consensus Workshop Report.

TitleEstablishing a Core Outcome Measure for Fatigue in Patients on Hemodialysis: A Standardized Outcomes in Nephrology-Hemodialysis (SONG-HD) Consensus Workshop Report.
Publication TypeJournal Article
Year of Publication2018
AuthorsJu, A, Unruh, M, Davison, S, Dapueto, J, Dew, MAmanda, Fluck, R, Germain, M, Jassal, SV, Obrador, G, O'Donoghue, D, Josephson, MA, Craig, JC, Viecelli, A, O'Lone, E, Hanson, CS, Manns, B, Sautenet, B, Howell, M, Reddy, B, Wilkie, C, Rutherford, C, Tong, A, Jha, V
Corporate Authors
JournalAm J Kidney Dis
Volume72
Issue1
Pagination104-112
Date Published07/2018
ISSN1523-6838
Abstract

Fatigue is one of the most highly prioritized outcomes for patients and clinicians, but remains infrequently and inconsistently reported across trials in hemodialysis. We convened an international Standardized Outcomes in Nephrology-Hemodialysis (SONG-HD) consensus workshop with stakeholders to discuss the development and implementation of a core outcome measure for fatigue. 15 patients/caregivers and 42 health professionals (clinicians, researchers, policy makers, and industry representatives) from 9 countries participated in breakout discussions. Transcripts were analyzed thematically. 4 themes for a core outcome measure emerged. Drawing attention to a distinct and all-encompassing symptom was explicitly recognizing fatigue as a multifaceted symptom unique to hemodialysis. Emphasizing the pervasive impact of fatigue on life participation justified the focus on how fatigue severely impaired the patient's ability to do usual activities. Ensuring relevance and accuracy in measuring fatigue would facilitate shared decision making about treatment. Minimizing burden of administration meant avoiding the cognitive burden, additional time, and resources required to use the measure. A core outcome measure that is simple, is short, and includes a focus on the severity of the impact of fatigue on life participation may facilitate consistent and meaningful measurement of fatigue in all trials to inform decision making and care of patients receiving hemodialysis.

DOI10.1053/j.ajkd.2017.12.018
Alternate JournalAm. J. Kidney Dis.
PubMed ID29551585
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